My Journey with Skin Lupus
Lupus is an Autoimmune Disease which turns the body on itself, mistakenly destroying healthy tissue. The body basically gets confused about which cells are good and which are viruses, in turn destroying perfectly good cells
Discord Lupus- a type of Cutaneous Lupus Erythematosus
Allow me to share with you a little bit of my journey on how Discord Lupus has affected my skin over the years. I was diagnosed with Skin Lupus over 12 years ago. It started with me discovering a rash on the bridge of my nose, and after several visits to the dermatologist and months of being treated with different topical creams, which didn’t help, the doctor eventually did a biopsy and the result showed that I had Skin Lupus
As the years went by, I had more lupus flares, which led to more rashes appearing on my cheeks, head, elbows, legs and back. Some of the medications that have been used to treat my Discord Lupus over the years included Prednisone, Plaquenil, Steroid cremes/gels and Steroid injections – not at all fun. The side effects from these medications can be severe, and a common side effect that I suffer from is thinning and discoloring of my skin.
All autoimmune diseases can put your hair at risk. Inflammation of the skin due to lupus may result in patchy hair loss.
This condition is called Alopecia, which happens when your hair is specifically targeted by the body for destruction. I have also struggled with Alopecia and for me this was the worst part of living with this skin disease. Loosing my hair and part of my eyebrows was very hard for me to accept, however superficial that may sound. Steroid injection along with other topical were also used by my dermatologist to treat my Alopecia.
Like some people, I have turn to alternative treatment methods such as natural hair treatment, oils, acupuncture and aromatherapy – although there is little, if any, evidence to support these treatments. I can personally say I have had some good results with the alternative treatment I have tried.
Lupus is very hard to get diagnosed, be persistent, early diagnosis is key and STAY OUT OF THE SUN, when possible and USE SUNSCREEN DAILY.
These rashes can cause scaring, which can be permanent.
Living with Lupus will be apart of my journey for the rest of my life, so I will continue to spread awareness and advocate for a cure.
I hope by sharing my story I can help to inform at least one person about this disease and let them know they are not alone in their fight.
Click on the link below for more information on Skin Lupus.
DISCLAIMER: The information provided and presented is to meant to educate and inform visitors in their quest to learn more about this horrific disease. The research and information provided on this site are not meant to be used as a substitute for Professional Medical advice. Information is gathered from several sources via the internet, print and interviews with doctors and professionals and may differ from your physician’s advice. Before attempting to change anything in your medical or health regimen, It is recommended that you first check with your personal physician.