Confidence- Despite living with DLE 

I no longer let my Discord Lupus (DLE) get in the way of my body confidence

 What is DLE?

Discord lupus erythematous (DLE) is a chronic autoimmune disease affecting the skin.

This chronic skin condition often appears as rashes with inflammation and scarring mostly on the face, ears, and scalp and at times on other body areas. These rashes develop as a red, inflamed patch with a scaling and crusty appearance.

Discoid lupus can be localized to affect a small area of skin, or may be more widespread.

1.5 million Americans have some kind of lupus and 99% affects mostly women.

Walk with confidence

At first I was ashamed and embarrassed of having these rashes/scares I would wear my hair down all the time to hide my scars in my ears, and on my face. I would make sure to wear clothing to hide my scars.

Putting on make up was an everyday chore for me. I would never leave the house without make up on, always trying to hide my scars which was tedious and time consumming. Leading me to be frustrated at times.

My confidence was shattered, it was depressing to look at these scars everyday. I would sometimes avoid going leaving the house.

However one day something shifted in my mindset. I was no longer going to make DLE take up so much of my time and energy. I was tired of making this disease control me.

Now I wear what I want; this confidence of mine  took a while-  it didn’t happen overnight, but I have grown older mentally and after 15 years of living with the demise of my beautiful chocolate skin.

I have learned to love the new skin I’m in, after all it will always be apart of me.

This doesn’t mean that I don’t have meltdown sometimes still. I love wearing dresses and I wear them with confidence, short or long whether you can see my scars are not. It’s now somehow befreeing to not put so much pressure on my self.

I have learned to love myself and not waste time concentrating on appearances… it took growth both spiritually and mentality. I have literally learned to love the SKIN I am in.

  

Ask me about it 

I am open to talk about discord lupus erythematous (DLE), ask me about it. By talking about it I get to inform others and also I’m all about spreading awareness when I can. So, when asked about my discord lupus I will gladly share my experiences and coping skills, always with the hope of helping someone else find peace and gain confidence like I did. I am still a work in progress there are days I have to search for that confidence, however I have gotten much better at finding it.

With more and more celebrities coming out and talking about lupus it is certainly helping to spread more awareness. I am so happy that over the last couple of years’ people are becoming more and more aware of this mysterious disease call lupus.

But we still have a long way to go.

 

Protect yourself from the sun

Discoid lupus is usually made worse by exposure to sunlight (it is photosensitive). To lessen flare-ups, try to stay out of the sun as much as you can. Make wearing sunscreen a priory, wear sunscreen every day.

If you do have to go out in the sun don’t forget to protect yourself. You can use hats and clothing with SPF that can help to protect you from having flare ups.

As the owner of Butterfly Box, I make it a priory to have sunscreen in our seasonal boxes.

At least twice a year sunscreen is one of the 9-items in our seasonal boxes. It’s that important.

 

For more information about DLE visit http://www.lupus.org

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